The Smith-Kingsmore Syndrome Foundation is a registered 501(c)(3) non-profit organization, created by parents of children diagnosed with Smith-Kingsmore Syndrome. It is the only global organization funding SKS research and providing education and support to the Smith-Kingsmore syndrome community.

Our mission is to improve the lives of all people impacted by Smith-Kingsmore syndrome by accelerating research and connecting our global community.

Accelerating Smith-Kingsmore Syndrome Research

We won’t stop until we have treatments and a cure for Smith-Kingsmore syndrome. We fund research, coordinate patient data, and mobilize researchers and clinicians across the globe to work towards a better life for everyone impacted by Smith-Kingsmore syndrome.

Supporting and connecting our global community

The Smith-Kingsmore Syndrome Foundation is here so no one has to face Smith-Kingsmore syndrome alone. While our community may be small, we are mighty! We are here to provide you with information, resources and community connections with others who know what you are going through.